Help Exploring At-Risk Disengagement Delphi study (hEARD)
Participant type
Rewards
Key Documents
Overview
This research study which aims to reach agreement on key priorities for a service user-centred care model to be run alongside current NHS services for people at risk of developing psychosis (often called ‘ARMS’ [At-Risk Mental State] or ‘EDIT’ [Early Detection and Intervention Team]) through voting for preferences using surveys.
Summary
What is the study about?
The study follows on from two earlier phases of the research, which developed priority statements from users who had disengaged from mental health services, and those for people at risk of developing psychosis.
We have generated priorities through exploring perspectives of people who have disengaged from services and how these might be improved.
The study is part of a National Institute of Health (NIHR) research fellowship, and the chief investigator will obtain a PhD as part of completing the study.
What are you trying to find out?
The purpose of the research is to arrive at key priorities for a user centred service model to be run alongside current NHS services for people at risk of psychosis to provide them with better care and reduce the risk of them leaving services early.
Through asking a mixture of experts to vote on priorities we aim to develop agreement on a set of final statements which will make up the model which we plan to test in clinical practice through applying for further research funding.
What does taking part involve?
After reading this information you would complete a consent form if you are happy to participate.
You would then be asked to complete three online survey rounds and will be asked to vote on statements for the service model. These statements have been taken from our previous studies linked to the research. The surveys will be sent via email containing a link to the survey platform (Qualtrics) for you to complete. The research team can post out consent forms and surveys if you do not have internet access (once consent is complete, postage to return pre-paid).
Prior to the first survey we will collect demographic information (age, gender, ethnicity, what type of expert you are; user, carer or professional). You will be asked to rate each statement to check your level of agreement with the statements. The next surveys will display results from the previous round (anonymous) and ask you to re-rate any statements not reaching agreement. There will be an option at round one to include any statements you feel might not have been included.
Each survey should take no more than 20 minutes. There will be a break between each survey round (two months) and if you complete the surveys, you will be sent the following survey. You would be expected to complete each survey within one month of it being sent out. Therefore, you will be involved in the study for a period of six months (however this only involves completion of the three surveys). This is due to our needing to allow for 80 participants to respond to the surveys and for us to analyse the responses and provide feedback to you at each round.
If you are a user or carer participant, you will be reimbursed for your valuable time with £25 upon completion of the three surveys.
Who is it for?
You are suitable to take part if you are:
- A current user of services (aged 16-65) for those at risk of developing psychosis, or a previous user who has left within the last 12 months, have been involved in research previously and have provided your contact details regarding future research studies.
- A carer of a current service user in receipt of care from services for those at risk of psychosis, or carer of an ARMS user who has left services in the past 12 months and provided contact details regarding research studies and nominates you as a carer with your permission.
- An expert practitioner, researcher, team or service manager or policy maker either currently working with those at risk of developing psychosis for at least one month or within the previous 12 months.
We intend to recruit 80 participants to the study.
Why is it important?
The study is an opportunity to share your experiences and perspectives on how services might support people better, contributing to the future care of ARMS service users.
Your expertise and experience will help us understand what is most important for the care of people at risk of developing psychosis, through your choosing which priorities are most important for service users.
How can I find out more?
You can find out more information about taking part in this study by downloading the key documents at the top of this page.
If you are interested in taking part in this study, or have questions for the research team, click the button below to email the research team:
Collaborators
As a service user, relative or carer using our services, sometimes you may need to turn to someone for help, advice, and support.
Find resources for carers and service users Contact the Trust